Information for Researchers

The Sarcoma Clinical Registry has been established by the Australia and New Zealand Sarcoma Association and collects data on sarcoma patients (covering demographics, diagnosis, surgery, pathology, staging, treatment, recurrence, and follow-up) from participating public and private hospitals in Australia. This information was previously captured in the ACCORD (the Australian Comprehensive Cancer Outcomes and Research Database).

Inclusion Criteria:

Patients aged ≥15 years managed at a sarcoma referral service in Australia with a histological diagnosis of sarcoma and related tumours.

Exclusion Criteria:

People under 15 years

Accessing sarcoma data

Researchers are able to access sarcoma data collected on the registry for ethically approved projects. To apply to access data click here to visit the Biogrid website. Alternatively, you can contact ANZSA to discuss your project feasibility and data requirements.  

For ANZSA members, we recommend you contact ANZSA before and after your application, so we are able to guide you in the use of sarcoma data fields within the registry.

Who should I contact for more information?

If you would like more information or have any questions or concerns about the Registry, please contact the Australia and New Zealand Sarcoma Association (ANZSA) at contact@sarcoma.org.au.